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Two weeks in the hell of monkeypox. “I had no idea how bad it was”

Two weeks in the hell of monkeypox.  "I had no idea how bad it was"

  1. WHO considers monkeypox a ‘global health threat’

  2. Monkeypox is a zoonotic viral disease. Symptoms include fever, headache, and a rash that begins on the face and spreads to the rest of the body.

  3. In the pages of “The Guardian”, 39-year-old Sebastian spoke about how he contracted monkeypox. “It was a complete nightmare,” he says, also referring to the struggle for care from the health care system.

  4. “Everything seems like a fiasco that shouldn’t be allowed” – assesses what happened to him

  5. More information can be found on the Onet homepage

“I had no idea how bad it was”

Sebastian is 39 years old and lives in Brooklyn, New York. A story that recently appeared in the Guardian begins: “My work over the past decade has primarily focused on health, sexual and reproductive rights, so I’ve followed the pandemic from the start.” The man decided to talk about how he contracted monkeypox. “It was a complete nightmare,” he says frankly, implying not only the suffering associated with the disease itself, but also the struggle for care from the health care system.

“On July 1, I started to feel very tired. I had a high fever with chills and muscle aches. My lymph nodes were so swollen that they came out of my throat,” Sebastian recalls. The COVID-19 test turned out to be negative, with another suspicion of monkeypox.

Two days after these diseases appeared, there was more, this time around the anus. “At first it was a stinging itch. At that moment I was not afraid (…) but I had no idea how bad it was” – he recalls. During teleportation, the doctor ordered tests. “I had all the symptoms of monkeypox and fortunately no one wondered if I should take the test…but I didn’t understand how limited my testing ability was: At this point, the city could only analyze 10 tests a day.”

The rest of the article is below the video.

The situation was complicated by the fact that the antiviral drug used in the treatment of monkeypox could be obtained after a positive test result. “So they sent me home” with an analgesic and antipyretic.

“I was screaming when I went to the bathroom”

Meanwhile, a rash began to spread all over the man’s body, and he himself became even more anxious. “The lesions appeared everywhere; at first they looked like mosquito bites, then they developed into pimple blisters that burst into scales. They appeared on my skull, my face, my arms, my legs, my feet, my hands, my torso, and my back.” – He says. “At the peak, I had over 50 cuts, a 39.4°C fever and severe pain, which led to a panic attack.”

Then it appeared all over the body “from the neck down” goosebumpsThere was a headache, joint pain in my fingers and shoulder, and “a strange pain in the shin bone that was so intense I couldn’t get up.” “During the night I woke up crazy with pain and itching,” she recalls. In addition, the lesions around the anus have turned into open wounds. “It was absolutely horrible. I was literally screaming as I went to the bathroom. Even keeping the area clean and washing myself was very painful. The process took two hours each time.”

He describes his situation in one sentence: “I was isolated, lonely and frustrated by the unfairness of the situation. I was obviously very ill, but I had to come up with a care plan myself.” – He tells in “The Guardian”.

“I was one of the lucky few who was invited for treatment.”

Four days after testing for monkeypox, Sebastian got a call from urgent medical care: The result was positive. “But other than that they didn’t give me any information. So I started calling to find out how to access the antivirals.” Unfortunately, he was sent to various places without any effect. “Then my throat started to swell, and my tonsils were covered in pus. At SOR they told me it was bacterial tonsillitis,” they gave me a series of antibiotics. “It is only eaten by people with severe immunodeficiency.”

The situation unexpectedly changed the following evening. “I finally got a call from a clinic at Columbia University Irving Medical Center. They said the Department of Health had asked them to look into my case. Apparently, I was one of the lucky few who was invited to therapy“He spent about an hour in the clinic,” says Sebastian. “I left with a two-week supply of monkeypox medicine.” I am very satisfied.”

“The day after treatment began, on July 13, someone from the Ministry of Health called me and told me that I might be at risk of developing monkeypox. I told her I had already been diagnosed with the disease and she asked about my symptoms. The interview took about half an hour, and it seemed That she was reading the text,” Sebastian describes, adding, “She didn’t even ask what my contacts were.”

Fortunately, the use of the drug is beginning to pay off. “The pests began to dry out very quickly, I only had three small crusts. Only in the past few days I was able to go to the bathroom without pain” – the man admits.

In his assessment of what happened to him during his illness, he said frankly: “The whole thing looks like a fiasco that should not be allowed to happen. If someone like me, who has been involved in sexual health for a long time, had a hard time ‘navigating the healthcare system’, I can’t imagine how others would do. I know quite a few people who are sitting at home in excruciating pain because they are not getting the support they need.”

We encourage you to listen to the latest episode of RESET podcast. This time, Olga Komorovska, voice therapist, voice coach and singer, will talk about what voice therapy is. What are the benefits of ‘faking’, what is vibration therapy and how are sound waves transmitted? You will find out by listening to the latest episode of our podcast.

  • https://www.theguardian.com/world/2022/jul/23/i-literally-screamed-out-loud-in-pain-my-two-weeks-of-monkeypox-hell
  • https://www.facebook.com/theguardian/posts/10161169871661323
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